Relationships and a chronic illness is a hard mix most times…trust me, I know! Whether it’s a friendship, family member, romantic interest, husband, wife or other relationship; it’s a challenge.
What is the HARDEST PART of maintaining a relationship when you are sick?
Here are some common challenges that a lot of CFIDS / CFS / ME patients experience when in a relationship:
- Scheduling Challenges
- Lack of Enthusiasm
- No Desire for Intimacy
- Need of Assistance/Caregiver
- Temperament Changes
- Communication Challenges
- Loss of Previous Identity
- Inability to enjoy hobbies /activities
- Embarrassment of inabilities
- Feeling of Helplessness
- Increased Financial Stresses
DO YOU HAVE ANY ITEMS YOU’D LIKE TO ADD?
CFIDS & Fibromyalgia Self Help have another list posted for additional ideas
Now that we have reviewed the CHALLENGES of being in a relationship with CFIDS / CFS / ME, how about we talk about the positives!
It’s hard to discuss this personal matter without referencing my 15 years of dating with CFIDS. I was diagnosed when I was 21 but had symptoms that left me bedridden starting at age 17. Being a personable athlete by nature, my desires for a relationship didn’t change with my varying health. I’ve had my fair share of the good, bad and ugly relationships over the past 15 years (who hasn’t)! I’d like to share with some of you out there some of the things you gain PERSONALLY while being in a relationship while living with CFIDS / CFS / Myalgic Encephalomyelitis (ME).
- Realization of Anger
- Facing Depression Head-On (thanks to a partners day-to-day realizations)
- Learning How To Communicate Current State of Health (how you feel day to day)
- Learning How To Listen (yes, you have to listen even when you are a patient)
- A New Understanding of Compromise
- Gaining the Ability To Ask For Help
- Sharing Humor and Laughs About Situations You Face
- A Second-rate home massage therapist
- Additional Channel of Emotional and Physical Support
- An Attitude Check (when it’s needed)
Not everyone has all of the above listed 10 items present in their current relationships. I honestly haven’t had those items previously. The list is a culmination of 15 years of learning what works for me, my partner and relationships. No one’s list will be the same, but I know the above helps me be a better chronically ill patient on a daily basis.
Quick Shout Out for my two rocks: my mom and my husband
Please leave your comments on what other items you think can be added to:
* Challenges Faced For Patients In Relationships With A CFIDS Patient
* Positives (or things learned) From Being In A Relationship With CFIDS
Can’t wait to hear your feedback! Update blog including you feedback is coming soon!Back to posts